Acanthamoeba Keratitis - Juliette Vila Sinclair-Spence.
Acanthamoeba Keratitis (AK) is increasingly becoming a significant topic of discussion among various stakeholders in the eye health community. As a patient advocate and founder of the Acanthamoeba Keratitis Eye Foundation, I want to take this opportunity to share the patient perspective on this rare and often devastating disease.
In the video testimony (within article), I recount my personal experience with Acanthamoeba Keratitis. This condition is not just a medical issue; it is life-altering. The devastation, excruciating pain, isolation, depression and trauma associated with AK are profound, and my hope is that by sharing my story, more people will understand the severity of this rare disease. It’s critical to recognize that Acanthamoeba Keratitis is a preventable condition, and raising awareness is essential to help those who may be at risk.
Read more: Acanthamoeba Keratitis - Juliette Vila Sinclair-Spence.
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